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Has anyone had Paget's disease of the vulva?
Gynecologic Cancers | Last Active: Nov 12 7:05pm | Replies (166)Comment receiving replies
@foster14, I'm tagging a few members like @ftwtxgirl @chaka67 @kanderstag who may be able to share more about having to have surgery due to tumor growth around the clitoris.
On the topic of overactive bladder (OAB), I wonder if you've even heard of bladder training. Read more here:
- Control frequent urges with bladder training https://connect.mayoclinic.org/blog/take-charge-healthy-aging/newsfeed-post/control-of-frequent-urges-with-bladder-training/
You sure have been through a lot of surgeries.
Replies to "@foster14, I'm tagging a few members like @ftwtxgirl @chaka67 @kanderstag who may be able to share..."
@colleenyoung
Unfortunately I have incontinence problems, and at times not able to get to the bathroom in time. That and with the pagets the urine burns so bad.
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@colleenyoung
Thanks for reaching out, Colleen.
I can share my experience with clitoris removal.
I had a diagnosis in 2022 of vulvar melanoma. At the time I was 79.
After biopsy, I had removal of the vulva however the margins were not clear so it was decided to be extra safe and remove the clitoris. I really had no problems with that surgery per se. This was followed by 20 radiation treatments, and 13 months of immunotherapy. I did have what you could expect in terms of raw tenderness but I believe that was more caused by the radiation treatments than the actual clitoris removal.
I’m not sure this is helpful but it was my experience.
Best
Kanderstag