← Return to Benign carcinoid tumor in bronchi tube

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Sorry the removal was incomplete. My suggestion is ask (insist) to see a NET specialist for a second opinion because a lot of doctors, even lung specialists, are not very familiar with Neuroendocrine tumors (NETs). I have many typical carcinoids in all lobes and it is a rare form of cancer (1% of lung cancer cases), but don’t let that scare you. It’s very, very slow growing. It’s typical to have one tumor and remove the lobe with the tumor for a one and done surgery and then just monitor you with CT scans for 10 years. You’ll find many people on this message board that have had a lobe with typical carcinoid removed and that was the last of it. Sorry you have to go through this but you’ll be okay. Blessings to you.

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Replies to "Sorry the removal was incomplete. My suggestion is ask (insist) to see a NET specialist for..."

@californiazebra my first lung specialist done a biopsy that was benign then he sent me to another lung specialist which dome a biopsy the same guy removed the 40% which also came back benign but the tumor was stuck to my tube wall so that's why full removal was unsuccessful

@californiazebra That was so encouraging. Thank you! I'm battling pain and needed to see what you wrote. There is hope.