Hello @jessie1990, and welcome to the NETs support group on Mayo Clinic Connect. Carcinoid tumors are NETs, and this is a rare form of cancer. Perhaps your doctor was referring to the fact that there were no other tumors found that would indicate metastasis?

There are several discussions on lung NETs. I would also invite others with typical lung carcinoids, such as @jhhaas and @ggiinnaa to discuss their experiences with you. I would also like to invite @californiazebra to this discussion, as she has both lung NETs and DIPNECH.

Here are links to some of these discussion groups.

--Recently diagnosed with a NET in my middle lobe of my right lung
https://connect.mayoclinic.org/discussion/recently-diagnosed-with-a-net-in-my-middle-lobe-of-my-right-lung/
--I am 75 and have carcinoid tumors NET in the lungs
https://connect.mayoclinic.org/discussion/i-am-75-and-have-carcinoid-tumors-net-in-lungs/
--Anyone Have Surgery to Remove Typical Carcinoids of the Lungs
https://connect.mayoclinic.org/discussion/typical-carcinoids/
As carcinoids are rare, one of the most important things you can do when you are first diagnosed is to have at least one consultation with a NET specialist. These are oncologists with special training in diagnosing and treating NETs. Mayo Clinic has NET specialists at all three of their locations (for appointment information, click on this link, http://mayocl.in/1mtmR63.) If you cannot be seen at a Mayo location, here is a list, from the Carcinoid Cancer Foundation, of NET specialists in the U.S. and worldwide, https://www.carcinoid.org/for-patients/treatment/find-a-doctor/

You mentioned having scans, such as PET, MRI, and CT. Were these whole-body scans or just of the lungs? Were any other blood tests done? Here is a list of many of the tests used for diagnosis and treatment: https://www.carcinoid.org/for-patients/diagnosis/diagnosis-and-follow-up-tests/.

I look forward to hearing from you again. Will you continue to post with your questions and concerns?