@jlharsh
Hi Janell,
I have an update on all of my symptoms. It has been a year long process to discover how to recover from the damage that Repatha caused. I still do not have full use of my dominant hand. I understand that it could take years to undo the damage that Repatha caused, so am moving forward with life at a limited capacity and pray that my body can heal from the damage.
However, after my doctors proceeded with every test available, they finally discovered what other damage occurred after taking this drug. Being that I had the physical ability of someone in their forties while in my sixties prior to using Repatha, I have had significant damage. I still have trouble doing simple things with my hands, and my strength has decreased by about 75%.
They have now discovered that I have venous insufficiency in both legs. My heart is fine. I have significant insufficiency in my left mid thigh and knee segments and significant insufficiency in my right mid calf segments, knee and throughout the thigh segments. I am sure this was caused by the Repatha as well, as I had nothing wrong with me and zero symptoms prior to being subjected to this drug. The only medical issue that I had was high cholesterol due to hypocholesterolmia before agreeing to go on this drug. Being that this was the only drug that I was on, it is very clear what damage it caused since there is no other drug involved. I am going to have to have a medical procedure to stop the leaks and will have to wear compression stockings for the rest of my life.
I am waiting to get approval for the procedure, but have found that the compression socks have helped with some of my symptoms. I thought that you should know what I found out, since your symptoms are very similar to mine. I had a doppler a year ago but it was to discover if I had clots, which I did not. This final test was a Bilateral Lower Extremity Venous Duplex. It was to check for clots, but more importantly, to check for leakage of the veins.
I am glad that I kept pushing the doctors to keep looking, because I knew something was not right. I have my answer now. If anyone on this thread has had some of the same symptoms as myself, I hope you have your doctors order this test. I would be interested to know how many of us have this same issue now.