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Dearest snorfish! I am so sorry to hear of this! I can’t tell you how you will be, as everyone is so different. Some breeze right through this and other’s have a more difficult time. Do your doctors know you’ll be alone afterward? You may be able to set up some kind of after-care right through the hospital. social services maybe? I know mine wouldn’t let me leave alone. The first week was my hardest because it’s just getting used to your body again. Your breathing, your movements, your sleeping are all going to be different until you get a feel for how you feel. Depending on your pain levels and meds. You should definitely at least have someone checking on you a few times a day. I feel so bad! I wish I lived near you I would come and be with you! I pray it goes well for you! Check into social services now, with the hospital. If they don’t have anything they may be able to direct you to another agency to help you.
Best wishes to you!🙏🙏🙏🙏
Cindy
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@cmcguire10 Oh thank you! At Swedish they assign you a team. I don't know if this is standard practice or not but you get a PA, an interventional radiology team, a thoracic surgeon and an oncologist....in that order as you progress.
I have written the PA and asked her to make sure that it is visible everywhere on my chart that I am alone and will be going to a hotel.
This may be silly but I'm afraid of slipping through the cracks and being sent out to a hotel alone. I will absolutely contact hospital social services!! I'll pin it on my gown if I have to lol.
Thank you for your insight in to recovery for me. You know, I thank God that I have the mental faculties to take care of all these things. WHEN I get through this I am 100% going to volunteer in assisting people who are alone and sick in navigating this process. It breaks my heart Every time I take care of another loose end I think "Oh my how would xxxxx do this if she didn't have family." So sad.