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Good morning, Greg D (@greg1956)

I emphasize. As my opening post indicated, poor balance is my No. 1 problem. I'm so fortunate that my particular breed of neuropathy doesn't also give me pain. I've given a lot of thought since my diagnosis in 2022 – plus done a ton of reading – about poor balance (What can be done to fix it?), only to come to the conclusion that there's no quick fix; the only thing I can do, besides the usual bromides (eat well, get plenty of sleep, etc.) is physical therapy – and Keep Moving! I do PTonce-a-week. I also use a kitchen timer to remind me to get up and move about, even if only brief stroll around the house. Are you doing PT, Greg? Has your doctor diagnosed neuropathy? What sort of neuropathy? And is your doctor a neurologist or has he some other specialty?

Here's wishing you a good day today, Greg!
Ray (@ray666)

Hi Ray,
Unbalance, for physical problem is a big one #1, but the other problem is a mental big problem, too. I am a TBI member since 2012 from a bicycle accident. That hits 80% ofmy brain, including memory, ability professional use, talking, playing the music guitar inside me, and on, BUT I am alive and my family/freindd.

Thx,
Greg D. @greg1956

Hi, Greg (@gregd1956)

Hang in there! You've had your setbacks, but it sounds like you're doing one hell of job keeping body, soul, and spirit in tiptop shape! Stay strong, Greg. You're an example of courage and determination to all of us with our challenging neuropathies.

I wish you the BEST!

Cheers!
Ray (@ray666)

@ray666 - Your comment to "keep moving" is so important and each person needs to determine the safest and best way possible. As the years go by with my sensory motor PN, I now use a cane more than I did a few years back and for about $20 a person can purchase a cane to provide extra balance. This isn't complicated, it's a matter of not falling and ending up in the ER.....or worse. Make adjustments as needed and I'm hoping many will take your advice. You use a timer, I use Alexa....whatever works to keep moving. Ed

Good morning, Ed (@njed)

I have good friend who's a cognitive behavioral therapist. I've never been in therapy myself (other than physical therapy, of course), but a long tome back, this friend, playing as if she were really my CBT therapist. asked me what my "wants" were, wants, that if they were realized, my make my life happier. Now, you have to remember, this was a longtime ago, before PN began to really mess with my balance. One of the wants I answered was: I want always to keep moving, not only physically, but in things like curiosity, dreams, all of my likes, thoughts, and feelings. Today, like you, I go about with a cane, but my "want"––to always keep moving––remains unchanged.

Here's wishing you a good day, Ed!
Ray

P.S. I have a Bay Alert watch on my left wrist. I never thought I'd be wearing one of these but, alas, the future is not ours to predict. 🙂

@ray666 Ray, as I mentioned in my post - make adjustments along the way even if it involves getting the alert watch for falls. All part of being safe, just don't move your wrist too quick, it might set off the alarm! Experience talking.

🙂 That reminds of when I first moved into this house. There was an alarm system. Ihadn't the foggiest idea of how to use it. One night while I was sitting quietly and reading there came this POUND! POUND! POUND! on my front door. I opened the door to find a gaggle of firemen wearing full fire-fighting gear standing in my driveway. All I could think to say was, Yes, gentlemen, can I help you? 🙂

@ray666 Hi Ray,
Just curious if your balance issues, which you said began in 2022, had anything to do with the timing of any Covid vaccine or Covid booster shot? My balance issues began several days after the booster.

Hello, @vvvalsigkap. No, no connection whatsoever. My disanosis was in 2022, but I'd been experiencing balance issues, milder at first, going way, way back, more like 2011 or 2012, if not even earlier. –Ray (@ray666)

Let me of what happened by falling down on my back. Kills my balance when I fell-down in my guarage.

I can’t drive (sp?) anymore, we parked j side our garage. Opened that door and hit my rear-ends on that door. Over the next 2-4 mths ended of cutting my grass; no more walking for my dog that after noon; pain was killing me; and on… that day in 2021.

That hits my balance - it’s still here. Thankfully, a year ago, my doctor has fixed my lower back and the pain is gone, but that lousy, bad, uggg, crappy balance is there. Acirding to my doctor - who fixed my back - says that could yakes2-3 years in my lower foot balance.

Thx,
Greg D. @greg1956