Triple negative - newly diagnosed and looking for your experiences

@roxy66
I had TNBC stage 2 tumor was 5.8cm which in canada is 2B
I had chemo first then surgery. I had a masectomy because was close to chest wall and because it was TNBC lobular I thought this was the best for me. I had it in left breast. I had to have radiation after surgery because it was a large tumor. I had 3 weeks of radiation.
After that I was on Xeloda because chemo shrunk my tumor by half which was good, so I was on that for 9 months.
They also fave me Zometa infusions every 6 months for 3 years.
I was 67 at time of diagnosis. Helps with bone loss and they believe reoccurrencecof cancer possibly to bones.
This was the canada protocol so yours may be different.
Take care

Hi Jan56,
I hope you will have an easier time on it, some people do. They can also reduce doses if needed.
I was told by the pharmacist when I picked up my first dose that diarrhea was common. Mine was bad enough that they reduced the dose. People can have hand or foot problems, in my case the bottom of my feet peeled , at that time they wanted me to stop, but I asked if I could take a lower dose. I did okay with that. Since our TNBC is not hormone driven this is a drug they use for us. Even with those reactions it was worth taking it since our cancer is a rarer form and they don't know alot about it, although I think that is changing now, more studies are being done.
Sending you hugs and hoping the best for you.

You are welcome.
Glad your hair is growing back, I didn't lose any hair, I do have 2 spots by my eyebrows not sure what from. Tho. They are a light tan color, but no where else.
I was on for about 8months, I had to stop and restart for a short time because of diarrhea also because of peeling feet.
I used creams with urea for my hands and feet.
Just as with the first chemo routine use a soft toothbrush as well.
Some people can get mouth sores but I didn't

I haven’t started any treatments yet. I have to have another MRI guided
biopsy that is scheduled on 11/13. On 11/3 the port will be placed. Did you
do the cold cap?
On Wed, Oct 29, 2025 at 4:14 PM Mayo Clinic Connect < nf+a398e505+81545954@n1.hubapplication.com> wrote:

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> You are welcome.
> Glad your hair is growing back, I didn't lose any hair, I do have 2 spots
> by my eyebrows not sure what from. Tho. They are a light tan color, but no
> where else.
> I was on for about 8months, I had to stop and restart for a short time
> because of diarrhea also because of peeling feet.
> I used creams with urea for my hands and feet.
> Just as with the first chemo routine use a soft toothbrush as well.
> Some people can get mouth sores but I didn't
>
>
>
>
>
> VIEW & REPLY
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@roxy66
They didn't have cold caps 4 years ago , but I did use the cold mitts.

You are welcome.
Glad your hair is growing back, I didn't lose any hair, I do have 2 spots by my eyebrows not sure what from. Tho. They are a light tan color, but no where else.
I was on for about 8months, I had to stop and restart for a short time because of diarrhea also because of peeling feet.
I used creams with urea for my hands and feet.
Just as with the first chemo routine use a soft toothbrush as well.
Some people can get mouth sores but I didn't