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Anxiety and stress with Bronchiectasis

MAC & Bronchiectasis | Last Active: Nov 2 7:07am | Replies (28)

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@kathyjjb when I was first diagnosed in March of 2021, my 1st pulmonologist told me I had sleep apnea!!! Not asthma, he told me quote: “you have enough lungs for two people”. And yes I did do a methelcholine challenge, and the Pulmonologist still insisted it was sleep apnea!! He had me do 3 sleep apnea sleep studies. I finally got tired of it and insisted on being sent to another hospital and they did only ONE test 1, a HRCT scan and told me I had Pulmonary Fibrosis with Traction Bronchiectasis. I too in recent years hear many medical professionals of course including doctors, say “Bronchiectasis hs been under diagnosed. I disagree I think it’s been MISDIAGNOSED!!! To say under diagnosed is just a play on words. Now I know that makes no difference whatsoever in my condition, I only would’ve been able to start the anti-fibrotic medication 7 months earlier, therefore slowing the progression of the disease more. Anyway in closing I know there are countless great and wonderful Doctors that mankind desperately need and want. I only wish the ones who might have “Tunnel vision” or egos so big they can’t or won’t refer you to someone who might be able to correctly diagnose you. Thank you for allowing me to vent some, I truly do wish anyone and everyone with this disease blessings and well wishes.

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Replies to "@kathyjjb when I was first diagnosed in March of 2021, my 1st pulmonologist told me I..."

@spider109 I'm so sorry about your experience. Me being misdiagnosed "as asthma" versus bronchiectasis pales in comparison to your experience. I hope you at least found some good doctors. I do believe the me using inhaled steroids for years contributed to my M.Abscessus infection.