← Return to NETs with Liver metastasis: starting lanreotide injections

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Profile picture for tgsenn70 @tgsenn70

My husband also has NET in small intestine and liver. Can someone tell me what symptoms come along with this diagnosis? Is vomiting common? What else can we expect? Any information is appreciated.

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Replies to "My husband also has NET in small intestine and liver. Can someone tell me what symptoms..."

@tgsenn70 I had weight loss & vomiting off & on with occasional abdominal pain that would double me over. Was anemic & had 3 months of infusions. Had every test imaginable until they finally scanned me & found I had a small bowel blockage, pathology confirmed nets.

I've had 9 months of Lanreotide treatment every 28 days. It started in my small intestine and moved to my liver. I've had headaches. Out of the 9 injections only 2 hurt. And the last one I got was the first time it was sore at the site. And I have a knot that isn't going away. When I touch it, it doesn't hurt. I am not experiencing pretty major chest pain. It is really uncomfortable. Waiting to hear the results of a Echo cardiogram. And results from the recent CT Scan. Just had a Mammogram and had a call from the doctor to see if it is returning breast cancer or Nets.