← Return to Any Success Stories for Mycobacterium Intracellular?

Discussion
Comment receiving replies
Profile picture for irenea8 @irenea8

@mark1952
I never heard of a CT being able to show if Pseudomonas is gone. I think it has to be a sputum test.

Jump to this post


Replies to "@mark1952 I never heard of a CT being able to show if Pseudomonas is gone. I..."

@irenea8
Agreed. Assuming some of the pulmonary nodules might be caused by the psuedomonas, I was hoping perhaps there might be fewer nodules on this scan. Unfortunately, my situation is murky because I think mycobacterium intracellular and bronchiectasis also cause pulmonary nodules. So I don't really know what, if anything, I will learn from the CT scan. Presumably there is a reason the pulmonologist ordered the scan. Hopefully, he will explain how it is meaningful. If the radiologist's observations just say "general worsening," as the last scan in August said, then I am sure the pulmonologist will say I need to start the Big 3 antibiotics immediately.

It is unclear to me whether the doctor ever had susceptibility testing done on my strain of pseudomonas from the lavage fluid from the bronchoscopy, if that is even possible. They have never asked me for a sputum sample. As a patient, I have so many questions and, unfortunately, I have a doctor who does not like to answer questions. They're aren't many options for pulmonologists in my area of NE FL. There is the Mayo Clinic in Jacksonville but my understanding is that they do not accept United Healthcare insurance. I am considering switching back to original Medicare, which Mayo does accept. I don't know what the wait time would be to see someone there. Thanks so much for your input. Best Wishes to you!