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nathansmith7143 avatar

Constant head pressure and headaches

Headache & Migraine | Last Active: 1 day ago | Replies (46)

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Profile picture for matthew9324 @matthew9324

@aw1 I'm writing this message to ask some questions, as I have many of the same symptoms as well, but I have yet to be diagnosed (plan to be diagnosed in ~3 months).

You mention you had similar symptoms to Nathan. Do your Occipital Neuralgia symptoms include the same depersonalization issues that Nathan had? I'm certain I have those depersonalization issues, and you also having them would make me consider ON as a possibility even more. Also, how would you describe your ON pain? I've been looking into ON forums, and they mainly describe their pain as nervous in nature (zappy, shocking, sudden). Some describe it as only pressure, but that seems rather rare. Do you have the same constant pressure that Nathan described? Or is it more zappy and nerve-like?

Any answer to these questions would be greatly appreciated!

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Replies to "@aw1 I'm writing this message to ask some questions, as I have many of the same..."

@matthew9324

Hi Matthew, sorry to hear you suffer many of the same symptoms.
Yes, I do suffer the same constant pressure that Nathan described. It does vary intensity but rarely goes completely. Worse when concentrate on an activity for a period of time. I was very sensitive to noise some months ago but at least that symptom has reduced now. I did suffer zappy horrible pains in the first weeks of the constant pressure which was probably why I had an MRI. I also had a CT scan with dye to check blood flow. But nothing abnormal was found. I've also recently seen a vascular consultant who advised my issue isn't vascular and still waiting on neuro referral for nearly a year now.
I think I have some but minimal depersonalisation issues. I'm still seeing the chiropractor and also a massage therapist who has knowledge of treating injuries. Chiropractor is not sure if ON is all or part of the cause. I would say on a scale of 1 to 10. 10 being the worst. When I started seeing the chiropractor and using a neck stretcher last October my symptoms dropped from 10 down to 5 but needs regular use of the neck stretcher. A few weeks ago I then also started weekly with the massage therapist (chiropractor approved) and the symptoms have dropped between 0-3 for 1-2 days after treatment but returns to 4-6.
I do find exercise helps, cardio machines at gym, walking, swimming. I try do include something every day. But the underlying condition is not easy to live with as is invisible to others. With no definite diagnosis and has been going on for over a year now. An ENT specialist mentioned I may also be suffering from Post Concussion Syndrome which is difficult to diagnose. Anyway, hope this is helpful.