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Poly Autonomic Idiopathic Neuropathy (PAIN)
Neuropathy | Last Active: Nov 2 8:37am | Replies (10)Comment receiving replies
@dlydailyhope
I was diagnosed from a punch biopsy done by the Cleveland Clinic on my eg with showed I have SFN, EMG showed I do not have large fiber neuropathy. Doesn't matter really as the only treatment they offered by the neurologist there was to increase the gabapentin dosage. I suspect my condition was caused by a Moderna booster shot back in the late 2022 period. The shot was followed by 5 months of a rash all over my body teared y steroids and than 10 months of dupixent shots. The SFN progressed from there. Oddly have it around my torso legs and partly upper torso. Not hands and feet like most. Not diabetic. Currently trying Low Dose Naltrexone and trying to get off of the Gabapentin; hate the side effects. Neurologists just keep upping the dosage. Also, take a low dose of Tramalod.
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@clutch541
I can relate. I have SFN but not large fiber. Idiopathic. Neurologists and rheumatologists have not really been of much help to me the last 8 years. They do not know how to cure or treat SFN other than prescriptions (I also can’t stand gabapentin or Lyrica side effects so I don’t take them). If they can identify diabetes or vitamin toxicities or deficiencies, that is what they may focus on to stop the progression.
The Covid shots definitely caused many neurological problems in addition to heart/lung (my experience with 1st 2 Pfizer shots were difficulty breathing and 3 “mini” heart attacks that left permanent damage to my heart). I also believe virus infections that linger throughout life wreck havoc on our neurological system plus toxins in air, water, food supply, packaged foods, etc.
I really do think my taking alpha Lipoic acid plus Acetyl l carnitine plus magnesium has helped keep my SFN under control. I take vitamin b12 because I am mostly vegetarian. Have you tried any supplements? Neurologists won’t tell you about them as they would rather push gabapentin, Lyrica, muscle relaxers, antidepressants, etc. I researched on my own and my symptoms improved and I told my neurologist and he said, “that’s good…I heard they helped some!” Why he didn’t share that information with me I do not know.
Have you had your spine checked for any compression in your neck or lower back?