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Oncocytic Cell Carcinoma with angioinvasion

Thyroid Cancer | Last Active: 19 minutes ago | Replies (23)

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I am so happy that you feel less alone. It’s crazy how this journey makes one feel ridiculously isolated - even with friends or family around.

The uptake scan was a low dose of RAI ( mine was capsule form ) followed by the scan, which was stupidly long, but pretty much the same principle as a CT scan. Other than being tedious, it wasn’t terrible. Not invasive at all.

The RAI therapeutic dose wasn’t great - I found the isolation room horrible. I had some nausea ( but not much ) and terrible headaches. Thereafter it was just a mental thing, as you constantly have to remind yourself not to hug your kids, play with the pets etc.

I was hesitant to have the RAI as I read too many horror scenarios of developing leukemia etc ( hence my saying don’t google - ask the experts! ) 🤣, but truth be told, I am really happy I have had it done, and all in all not nearly as bad as it’s made out to be. Definitely take along tons of sour candies to stimulate your salivary glands, otherwise they become tender and your mouth very dry. I have a new appreciation for sour patch kids! 🤣

🦋🦋🦋

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Replies to "I am so happy that you feel less alone. It’s crazy how this journey makes one..."

@samjdp
Good to learn about the uptake scan, I had something way more invasive pictured in my mind and was too scared to ask about it or research it.

My team is going to let me isolate at home since my house has a basement and I can completely isolate from my husband and kitties, which sucks, but I'm glad it's not in the hospital for that part since I'll have to isolate for 7 days. Good to know about the dry mouth, I'm already prone to that so I'll stock up for sure on sour candy!!!!!

If you ever need to message me for support, I'm here. Let me know how your Dec 10th scan goes, I'm rooting for a sparkling clean report!

~Erin