Connect
← Return to Pancreatic Cancer Group: Introduce yourself and connect with others
Discussion
Pancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 5 days ago | Replies (1917)Comment receiving replies
Hello - I have been following this site since around April 2023. My husband was diagnosed then with 1A PC. Confined to pancreas - 2 cmm tumor. He went through 5 months of FOLFIRINOX and then had the Whipple in October 2023. Margins came back clear with a NCR to chemo. We have been sailing for 2 years with clear scans. Last week we went in and he had what appeared to be clear scans but his CA-19 test came back very high. This blood test for him has NEVER been elevated, even when he started out with PC. Our oncologist is ordering new PET Scan to look for early reoccurrence. The only thing that looked suspicious was a lung nodule had increased by 1 cmm from scans 6 months ago. Has anyone had any experience with this? Looking for any feedback.
Replies to "Hello - I have been following this site since around April 2023. My husband was diagnosed..."
Connect
@dianegil
Hi, My husband Mike was diagnosed in August of 2023. Tumor found incidentally, it was 4 cm in the tail of the pancreas. He had 6 months of Folfirinox followed by removal of half his pancreas in 2/24 and his spleen, 26 lymphnodes removed, all clear. For a year there was no sign of return of the cancer. In Feb 2025 he started to have elevated CA 19-9, every 3 months they increase.. 186 - 386 -880 and now this week 4200. The oncologist has been alternating with PET scans and CT scans. He did same he would never treat with Chemo for just an elevated CA 19-9. Yesterday he changed his tune. Also the PET scan now shows something hot on his stomach... in could be nothing but it could be metastatic disease. He offered Mike - Chemo OR Endoscopy to assess stomach OR wait. We decided to opt for the Endoscopy with ultrasound. They will biopsy anything they find. Here is hoping it is not new cancer. Mike's doctor thought it was very strange for him to have elevated CA 19-9 without any other sign of disease.