← Return to Any Success Stories for Mycobacterium Intracellular?

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Profile picture for pmmar1 @pmmar1

I have MAC/BE and a lung fungal infection. I stopped the Big 3 almost 3 years ago due to side effects and am on no meds -- at this point anyway.

You are only 73 years old and without many symptoms and I can only suggest you focus on your "good" life now and move on. This disease is slow growing and I will not wait around for its growth. I am 80 years old with no comorbidities. I do Aerobika twice daily w/o saline as I am prone to hemoptysis.

I felt the same way you do when I was first diagnosed with MAC Intracellular and thought "This is it!" That was 3 years ago! But it turns out that we people with few symptoms are quite fortunate. I keep busy, eat a Mediterranean diet, and walk 1-2 miles daily and enjoy my life over all. Admittedly, it is not ideal but one I can accept and enjoy.

Unless something major were to develop, which can happen even when you don't have a disease, I focus my days on positive thoughts and whatever life I have left will not go unfilled and my hope for you is the same! Best wishes!

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Replies to "I have MAC/BE and a lung fungal infection. I stopped the Big 3 almost 3 years..."

@pmmar1

Thanks so very much for sharing your status. I completely agree with you. My only symptom is some occasional mild coughing with very small amounts of white/clear slippery sputum. I have a CT chest scan in two weeks to see if the Ciprofloxacin helped the psuedomonas, which I believe it did. My crazy busy pulmonologist keeps giving me dark looks saying we need to start the big 3 antibiotics. I am not onboard with risking the adverse, often serious, and sometimes permanent, side effects right now, when I am enjoying a pretty darn good quality of life. Thanks again. I hope your decent quality of life continues for you! 🤞🏻🙏🏻