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Anxiety and stress with Bronchiectasis
MAC & Bronchiectasis | Last Active: Nov 2 7:07am | Replies (28)Comment receiving replies
@jjudah I use the Aerobika that incorporates a flutter chamber into the nebulizer. I do that in the morning and then use the aerobika nebulizer cup in eve, so I sterilize 1/day. I am really tired of this as well. I'm seriously thinking of making an investment and buying 7 Aerobika's and 7 aerobika nebulizing cups and boil just 1/week. Just curious, have you done the methylene choline challenge and Nitric Oxide test to confirm asthma? I am hearing more and more people saying their bronchiectasis was confused for asthma. My pulm dr had me on inhaled steroids for years, got MABC, went to NJH and they told me I didn't need any steroids. It took me a few months to wean off of the inhalants, but I did.
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@kathyjjb when I was first diagnosed in March of 2021, my 1st pulmonologist told me I had sleep apnea!!! Not asthma, he told me quote: “you have enough lungs for two people”. And yes I did do a methelcholine challenge, and the Pulmonologist still insisted it was sleep apnea!! He had me do 3 sleep apnea sleep studies. I finally got tired of it and insisted on being sent to another hospital and they did only ONE test 1, a HRCT scan and told me I had Pulmonary Fibrosis with Traction Bronchiectasis. I too in recent years hear many medical professionals of course including doctors, say “Bronchiectasis hs been under diagnosed. I disagree I think it’s been MISDIAGNOSED!!! To say under diagnosed is just a play on words. Now I know that makes no difference whatsoever in my condition, I only would’ve been able to start the anti-fibrotic medication 7 months earlier, therefore slowing the progression of the disease more. Anyway in closing I know there are countless great and wonderful Doctors that mankind desperately need and want. I only wish the ones who might have “Tunnel vision” or egos so big they can’t or won’t refer you to someone who might be able to correctly diagnose you. Thank you for allowing me to vent some, I truly do wish anyone and everyone with this disease blessings and well wishes.