Osteosarcoma on my left mid tibial bone, Hospital recommendations?

Posted by jamespnsolo @jamespnsolo, May 5 12:02am

I’m 18yrs old , l have diagnosed with Osteosarcoma cancer on my left mid Tibial bone. Anyone with good experience of Limb Salvage surgery hospital.

Interested in more discussions like this? Go to the Sarcoma Support Group.

Profile picture for marrish04 @marrish04

@tiffaniep

I'm having a bad day and desperately looking for something to hold on to.

Michael's cancer has spread and is partially blocking his carotid artery, causing him to faint.

Other than the chemotherapy they start today, there's nothing more they can do.

Can anyone respond about their own times when things felt hopeless?

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@marrish04, I hope you saw the lovely post that @ctflyr wrote to you. How is Michael doing? How are you doing?

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Profile picture for ctflyr @ctflyr

Hello....
My hopeless moment came with the delivery of a sarcoma diagnosis, given by my Wife's surgeon, in a noisy, crowded, tv-blaring waiting room. In a brief few minutes, he delivered the information in somber, clinical tones. I was devastated and scared for my Wife and for me. It's hard to seperate emotion from cold logic in those searing moments. The key to handling these circumstances, is to not allow emotion to take over, and overwhelm you. With time to process, and support from loved ones, you get thru the overwhelming part, and start down the road to gradual acceptance and the "new normal".
I'm sorry the news you're getting right now is difficult and negative. Hopefully, with each passing day, you can see things differently or with a clearer perspective. I know that there are many stories of remarkable recovery after devastatingly difficult circumstances, and your Grandson could be one of them!! GOD BLESS you and your Family...❤️

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@ctflyr
Thank you so much for your story and encouragement.

Michael has been referred to palliative care and although it's not end of life care, it's a prelude to it.

This has all happened so fast, we hardly got a chance to catch our breath. Best described, as a psychological punch in the gut.

Despite the poor prognosis, we are hanging on to each and every bit of hope. Made possible, in part, by you and others who walk along with us on this rocky road.

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Profile picture for Colleen Young, Connect Director @colleenyoung

@marrish04, I hope you saw the lovely post that @ctflyr wrote to you. How is Michael doing? How are you doing?

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@colleenyoung
Hello Colleen. I did not see it so I appreciate the heads up.

Michael had his first dose of Chemo, followed by overwhelming nausea and vomiting.

Having to watch him suffer through treatment without much chance of survival doesn't make much sense, but giving up is not an option.

How are you doing?

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Profile picture for marrish04 @marrish04

@ctflyr
Thank you so much for your story and encouragement.

Michael has been referred to palliative care and although it's not end of life care, it's a prelude to it.

This has all happened so fast, we hardly got a chance to catch our breath. Best described, as a psychological punch in the gut.

Despite the poor prognosis, we are hanging on to each and every bit of hope. Made possible, in part, by you and others who walk along with us on this rocky road.

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@marrish04

Hello again....I'm hoping days may be brighter for you, your grandson and your family. If you can, please read or have your grandson read Victor Frankl's "Man's Search for Meaning". It may be helpful. GOD bless.

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Profile picture for ctflyr @ctflyr

@marrish04

Hello again....I'm hoping days may be brighter for you, your grandson and your family. If you can, please read or have your grandson read Victor Frankl's "Man's Search for Meaning". It may be helpful. GOD bless.

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@ctflyr

Hello ctflyr.
I thank you for your warm message and recommendation for Mans Search for Meaning. I read this many years ago and I actually fact have a copy in my book stand.

There is much that I've forgotten, but I do recall, and try to practice, the concept of looking for that one thing that is positive. I'm sure there's much more to it, so I plan to read it again soon.

This diagnosis has been consuming in ways I never imagined. Trying to have hope in a hopeless situation is something I've never experienced before. It will require a whole new skill set.

They say that pain is a good teacher, but why does the test always come before the lesson?

How are you doing?

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Profile picture for marrish04 @marrish04

@ctflyr

Hello ctflyr.
I thank you for your warm message and recommendation for Mans Search for Meaning. I read this many years ago and I actually fact have a copy in my book stand.

There is much that I've forgotten, but I do recall, and try to practice, the concept of looking for that one thing that is positive. I'm sure there's much more to it, so I plan to read it again soon.

This diagnosis has been consuming in ways I never imagined. Trying to have hope in a hopeless situation is something I've never experienced before. It will require a whole new skill set.

They say that pain is a good teacher, but why does the test always come before the lesson?

How are you doing?

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@marrish04

Hi....thanks for your reply! Unfortunately, there's no real preparation for adversity. It's up to those impacted by it to choose their way to manage it, and hopefully triumph. In our case, we were caught completely by surprise. After dealing with the shock and sadness, we've moved forward, trying to appreciate each day as a gift, and as it's given. We've been on this new journey almost 3 years, and hope for many more...GOD willing. While it's cold comfort sometimes, we all have a "story" to live in and with. I'm in awe of the many who persevere.

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I had it done and even though legs weaken it was better than an amputation.

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