← Return to How do I know if things are worse?

Discussion
playgdough12 avatar

How do I know if things are worse?

Caregivers: Dementia | Last Active: Nov 8 2:08pm | Replies (20)

Comment receiving replies
Profile picture for ocdogmom @ocdogmom

I am so sorry you are having such a stressful time with your mother. In my experience it sometimes feels like you are being sucked dry. As dementia progresses, balance and the ability to walk declines. The suggestion to put rails on the walls and make sure that her path is well lighted is an excellent suggestion of what you can do. My husband is in the stage where his balance is poor and has had multiple falls resulting in broken vertebrae, ribs and a brain hemorrhage. He, too, refuses to use the walker at times which is right at his bedside. I put a strap with large jingle bells on it so that when he goes to move it out of the way, I can hear that he is on the move. I also have a baby monitor so I can see and hear him when I am in another room. Your Mom may prefer to be in bed because she has degenerative spinal disease that causes pain when sitting up (common at her age). My husband deals with this. If you need to feed her in bed, then having her on her side would lessen the risk of aspiration. With age and dementia the signals to the brain for swallowing effectively are damaged. I agree with the others that it is highly possible that she has a urinary tract infection which can cause changes in behavior and can become serious if not treated. There are often no symptoms other than a frequent need to urinate and behavior changes, delirium can result from a UTI. I would recommend speaking with her doctor about your concerns and then taking her to have her urine checked. If they have trouble getting a sample, ask for a plastic "pan" that goes over the toilet and under the seat and a sterile specimen cup. When she urinates it will be collected in there and then you can pour the urine in the cup and take it to the lab/doctor's office. This is a relatively simple thing to do to rule out or confirm an infection which can easily be treated. I am sure that you are doing the best you can do on any given day. This is a really challenging and sad road to be on. You are not alone. We are here for you. God bless you and give you courage and strength.

Jump to this post


Replies to "I am so sorry you are having such a stressful time with your mother. In my..."

@ocdogmom my husband has had 2 hospital visits with symptoms that indicate uti but both were negative. The first showed E. coli in blood that required 12 days of I V antibiotics. 20 days later same symptoms, frequent urination and weak and confused, negative ua once again. Possible pneumonia? No symptoms. So confusing.