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Anxiety and stress with Bronchiectasis

MAC & Bronchiectasis | Last Active: Nov 2 7:07am | Replies (28)

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Thanks @lmanells for sharing more details about your BE journey. Most if not all of us here started with a cough, suffered through numerous episodes of bronchitis and/or pneumonia, and in many cases, like mine, took a l o o o n g time to diagnosis. Mine was diagnosed as asthma for almost a decade. This diagnosis makes life challenging and there's a certain amount of resilience we build up to cope. Cliché-y, some days are better than others.

Very glad to hear you have gotten some relief from Brinsupri. We all hope that by being on this drug it will break the "vicious vortex" of inflammation, infection and damage to our fragile lungs. Also, great that you use hypertonic saline. Hypertonic saline is available in 7% concentration as well if you'd like to take it up a notch. What do you do for airway clearance? Common methods are autogenic drainage and huff cough.

To address uneasiness and anxiety about worrying about things we cannot control, it's helpful to assemble a supportive team: pulmonologist from one of the BE centers around the US. A knowledgeable pulmonologist can connect you with pulmonary rehab if needed. A knowledgeable pulmonologist will likely have a nurse and NP who you can contact during periods of exacerbation. Sometimes actively "doing something" about the BE will help to diminish anxiety and worry. When I find myself spiraling due to negative thoughts, I imagine a very large broom that comes down from sky and sweeps those thoughts away! Somedays I sweep a lot. Doesn't work all the time but sometimes it does!

There are number of resources here at Mayo connect. One of our members wrote a book and hosts a website for BE. https://www.letsbecleartoday.com . And, I was surprised to see in the public library, newish books about BE. Here is a screenshot of some of those books.

Hope this for starters helps a little bit.

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Replies to "Thanks @lmanells for sharing more details about your BE journey. Most if not all of us..."

@scoop
Thank you so much for your thoughtful response and for sharing your own experience. It really helps to know I’m not alone in this journey. I appreciate the practical suggestions on airway clearance and the reminder about hypertonic saline—I’ll definitely discuss the 7% option with my pulmonologist. Your advice about building a supportive team and finding ways to actively manage anxiety really resonated with me. I love the broom visualization idea—I’m going to try that! Thanks also for the resource links; I’ll check out the website and look for those books. Your encouragement means a lot.