@retiredbabe I would recommend that you do some research on Mast Cell Activation before you go to your doctor. It may be that he/she has never heard of it. It has been a recognized diagnosis for only 12 or 15 years. As far as I know, and it may be different now, there is not a test for mast cell. That's why I suggest you research on the Mayo Website, Cleveland Clinic, or just Google and see what you find. I think it is diagnosed when other things are ruled out. My daughter takes Sodium Cromolyn mixed in water 30 minutes before meals and before bed. It prepares the gut for food. There used to be a Facebook site on mast cell where you would be able to see what other people have experienced and see if you find some situations that match yours. I'm not sure if it is active, but it might still be up. I hope this is helpful. My daughter struggled for a long time before diagnosis. Looking back we think she had it at birth. She is adopted, and came to us at about 7 weeks. She had difficulty adjusting to a formula, and the pediatrician finally took her off formula and fed lambs meat, pears, and calcium supplement. She does not drink milk. I would be interested to know what you find out. Good luck!