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How to address PMR pain while decreasing prednisone
Polymyalgia Rheumatica (PMR) | Last Active: Nov 2 6:56pm | Replies (764)Comment receiving replies
Hello @aeckman, Welcome to Connect. Sorry to hear you have joined our PMR club but happy to see that you have joined Connect. You are not alone with your PMR/prednisone struggles. Thanks to @dadcue, here are a few discussions with videos to help you learn a little more about PMR and hopefully get you on your road to tapering off of prednisone.
-- History of PMR -- Interesting video presentation from past to present.
https://connect.mayoclinic.org/discussion/history-of-pmr-interesting-video-presentation-from-past-to-present/
-- Comprehensive Overview Of PMR
https://connect.mayoclinic.org/discussion/comprehensive-overview-of-pmr/
-- Video: Steroids and PMR - International Panel of Doctors
https://connect.mayoclinic.org/discussion/video-steroids-and-pmr-international-panel-of-doctors/
You mentioned having your questions passed off when talking with your doctor. Have you thought about meeting with a rheumatologist?
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@johnbishop As you will hear, PMR affects people differently, we respond differently to medication and our pain can be different - one size does not fit all. So there aren’t a lot of concrete answers to anything. I too wanted to get at the root cause and snuff it out. Still looking after two years! Still asking my Rheumatologist lots of questions - many which get answered with “We just don’t know.” And still trying different drug regimes (as well as diet, exercise when I can) to calm the PMR storm. Good luck!