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Is anyone familiar with the BK Virus?

Bladder Cancer | Last Active: Nov 8 2:30pm | Replies (14)

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Profile picture for Sue, Volunteer Mentor @sepdvm

Hello @mnewland99 and I am so sorry you are dealing with all of this. I just wanted to warn you about my husband's experience with diagnosing bladder cancer. Locally he had a cystoscopy and CT Urogram and was pronounced no cancer despite a positive FISH test and cytology from urine showing highly aggressive urothelial cell carcinoma. It was because the tumor was in a little pouch off the bladder (diverticulum) that the urologist did not bother to look into when he did the cystoscopy, Thankfully he had an executive physical scheduled at Mayo Clinic shortly after this and the doctor there caught the cytology report, had the CT scan sent to Mayo where radiologists saw the tumor in the diverticulum and we progressed from there to treatment and surgery. We lost faith in the local doctors to have missed these findings. If your cytology says bladder cancer, ask for a referral for another opinion. Sometimes things are missed. Do you have a large cancer center or teaching hospital nearby?

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Replies to "Hello @mnewland99 and I am so sorry you are dealing with all of this. I just..."

@sepdvm
Thank you Sue for sharing that info. What kind of surgery did your husband have? Luckily you are close to Mayo (which one?). I live coastal in Southern California so my primary go to medical is on Newport Beach. City of Hope has a new facility in Irvine and they aren't a teaching hospital, but they do have some top notch cancer specialists there and so I'm trying to get a 2nd opinion ASAP. I wish the best for you and your husband!