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DiscussionSevere Central Spinal Stenosis Symptoms
Spine Health | Last Active: Oct 29 10:04pm | Replies (13)Comment receiving replies
Replies to "I had spinal fusion surgery that was originally to only be L5 to S1. I was..."
I had a spinal fusion 11 years ago. It couldn’t be done until every other procedure was tried like a chiropractor. Physical Therapy, acupuncture, etc. They did the surgery on L5-S1. They sent me home alone without care. I ended up in the hospital emergency room 3 times because I was told that I couldn’t live alone during the 6 month recovery. I lined with my daughter for 3 months after. I am still dealing with pain and working with a pain specialist for 7 years. He tried 7 procedures including a spinal stimulator and nothing helped. I am on Norco. Without it, I couldn’t do the daily routine of life. I’m still limited to what I can do and may try a pain pump to get off of Norco. I am 73 and in perfect health except for back pain. I’m not giving up.
@oldferryroad Thank you for sharing your story. It's just as important to hear a story like yours with the honesty of disappointment. It is easy to rush into surgery when a patient is in pain and if a surgeon ever pressured me, I would run away. It takes patience to get several opinions and that can take time when you have to wait for appointments. I'm sorry that you find yourself in this position, but I applaud your courage to speak honestly about the dangers and risks of major surgery. All of us need to advocate for ourselves and ask many questions not just about what could go wrong, but about what other conditions can produce overlapping symptoms (called a differential diagnosis), and also what would your future be if no surgery is done.
I don't know if this may help, but if some of your pain comes from the excessive scar tissue you have from the surgeries, there is a physical therapy technique called myofascial release that can stretch out the scar tissue and tight tissue. It can help get fluids circulating in tight dehydrated tissue. Sometimes that can ease pain. I have done this MFR stretching for years and it has helped me a lot. I have stretched out surgical scar tissue from cervical spine surgery and an ankle fracture.
Here is our MFR discussion where you can learn more.
Neuropathy - "Myofascial Release Therapy (MFR) for treating compression and pain"
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
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Thank you for sharing your story, so sorry that you continue to be in pain even after surgery. I have spinal stenosis and a bulging disc at L5-S1, I have had the pain for 8 mth's now, and waiting to get a 2nd injection in hopes that it will help.