Replies to @mnewland99 One of the tests your doctors have run should say if you ate MSI high….

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Pancreatic Cancer | Last Active: Oct 27 9:43am | Replies (59)

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@gamaryanne

@mnewland99
One of the tests your doctors have run should say if you ate MSI high. I know you have excellent doctors; both of the Lynch patients i know have found Keytruda to be a wonderful life changing drug for them.
Is there any way you could get to Dr Boranzanci in Scottsdale? He has seen and worked with so many anomalies with pcan.
Praying deliberately for pain relief and a doctor to dig in to all of this and help you find answers. It is so hard to be your own advocate when you are in pain.

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Replies to "@mnewland99 One of the tests your doctors have run should say if you ate MSI high...."

marienewland | @mnewland99 | Oct 27 9:43am

@gamaryanne
Thank you, gamaryanne! I'm more in discomfort right now than pain. Mostly I have just shooting pains rather than constant pain. Unfortunately, I'm not the jet setter as you as I'm afraid of flying in my old age and driving through the desert to get to Scottsdale (though my late father in law's wife still lives there) does not appear attractive to me as I see all my conditions as potentially fragile driving through the desolate desert from California to Arizona. I'm trying to get a 2nd opinion from a urologist at City of Hope in Irvine. I still need to be tested for Lynch Syndrome; it's just something my brother-in-law (retired dr) sent me.
How's it going with you? What regimen are you on now?

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