@pamperme
Actually, after the prostatectomy, my PSA went to undetectable for 3 1/2 years. Then it started rising and at .2 I had 7 1/2 weeks of salvage radiation. That gave me 2 1/2 more years before it started rising again. I have BRCA2, which is why it keeps coming back.

It will be very useful to see your decipher test results, but with you having these items, cribriform, EPE, several indeterminable margins, stage 3a, it is very likely you are going to have a reoccurrence.

Yes, that PSMA pet was unlikely to show anything, but huge metastasis, since your PSA was so low.

While salvage radiation can cause issues I had none at all. The issues it causes are usually temporary. The question is what is causing the pain you’re having. That is very unusual for somebody that has had a prostatectomy. I suspect they did the PSMA pet to see if there was cancer in that area, causing the pain. Have you discussed these pain issues with your urologist? I would definitely want to find out why it was happening.

You had a PSA of .15 and then it went down to .13. You can wait until .2 before getting the radiation, But did you have the test done at the same place? You can get different results from different labs. Definitely want to hear what the next PSA test shows. Going from .05 to .15 in two or three years is a very slow rate of doubling.

Usually they give you ADT a couple of months before your Radiation,. I got a 6 month shot two months before my radiation, and to tell you the truth, I had no idea what it would do and I never had any side effects from it that I remember (it was in 2014). I did start on Lupron in 2017 and have been on it or Orgovyx (ADT) Since then. I had really major hot flashes when I went on Lupron in 2017 so I should remember side effects from 2014, but I don’t.

Yes, having any PSA at all is due to something growing somewhere. The question is, How fast is it growing. You should continue to get monthly PSA test tests for a while. I’ve been getting them for over eight years.