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Profile picture for missmx @missmx

I had the first seizures hours after hysterectomy surgery. No bites then. Since then I have had my tongue sutured on the 2 other occasions. The 2nd bite was very deep and took weeks to heal. I've had to turn to mouth guards while i wait for my neurology appointment. I've read that having them in my mouth during tc seizures while I sleep may be dangerous.

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Replies to "I had the first seizures hours after hysterectomy surgery. No bites then. Since then I have..."

@missmx
Good Morning!
Welcome to our community at Connect.
I was surprised to learn that your seizures began after your hysterectomy. As far as I know, it's unusual for this type of surgery to directly cause ongoing seizures or epilepsy. I'm truly sorry you're experiencing this, especially the tongue injuries.
I'm curious to know whether your surgeon offered any explanation for the seizures that occurred post-operatively. And are you currently taking any anti-seizure medication?
Wishing you strength as you navigate this challenging time!
Chris

@missmx In rare cases anesthesia can cause long-term epilepsy especially if there are underlying issues. It is also possible, but highly unlikely, you were given too anesthesia during the procedure. You may want to discuss the possibilty of your epilepsy being triggered by the anesthesia. That may lead to other treatment plans.

@missmx
i would think something like a face mask with attached mouthguard could be made and modified to make it work while you can sleep without swallowing the mouth guard.