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@krisingle1
I know just what you mean! I find that each specialty will not discuss me as a person, just as symptoms; so I keep appointments 3 or 4 times a year with my PcP. My rheumatologist is primary. However I was feeling short of breath, like when I have pneumonia and realized not one provider had listened to my heart and lungs in ages! When I asked him to, he disappeared for awhile trying to find a stethoscope! After ages without a good internist, I know what you mean because she looks at tests, diagnostic and preventative, orders labs. I have all the others forward results to her. It might work for some people to do this for themselves. But I'm 67 and have been living with chronic disabling illness since I was 31. It is complicated! And I have energy limitations. I was an RN. I used to advocate for people in their homes. Believe me, not everyone is able to manage their own case! Good luck to you. I hope you reply if you can find a way to get that help.

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Replies to "@krisingle1 I know just what you mean! I find that each specialty will not discuss me..."

@jw9 Hi there. Thanks for your response and information/suggestions. I'm guessing that since I'm still in the investigation phase right now (don't know exactly what I have), the rhuemo WON'T be PCP b/c she may not be the right person? She still kindof is, but just not in name. Meanwhile, at her suggestion, I messaged my ortho and pain management guy and they both got back to me within close to 12 hrs. Still nothing from PCP LOL

@jw9
hi, did you ever find out about the shortness of breath? I started experiencing it a few months ago.