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← Return to Histotripsy: My experience
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Pancreatic Cancer | Last Active: Oct 27 9:43am | Replies (59)
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@gamaryanne
Not gas, that was the first guess by my team. Inflammation it seems but who knows?
Yesterday my urologist told me one of the tests he ran via my cystoscopy last week was positive for cancer. It was actually positive for high grade BK virus which I'm learning after reading, through help of my brother-in-law's research tjst it Csn torn into bladder cancer - oh what fun!! Might also be related to Lynch Syndrome which I haven't been tested for yet.
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@mnewland99
One of the tests your doctors have run should say if you ate MSI high. I know you have excellent doctors; both of the Lynch patients i know have found Keytruda to be a wonderful life changing drug for them.
Is there any way you could get to Dr Boranzanci in Scottsdale? He has seen and worked with so many anomalies with pcan.
Praying deliberately for pain relief and a doctor to dig in to all of this and help you find answers. It is so hard to be your own advocate when you are in pain.