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SIBO and MAYO
I see that there are a great many of us who work to manage SIBO with few medical resources available. I, like many of you, have tried the low fermentation diet, the low fodmap/fodzyme diet, tons of supplements and seen many different practionerers. BUT, have any of you gone to Mayo for treatment? Did it work? Two family doctors (one alternative health - very progressive) and two gastro doctors have given up on me after 4 rounds of antibiotics and again, tons of supplements, have left me a bit better but still with SIBO. Now the last is referring me to MAYO although I have not read anything connecting MAYO to SIBO success so I don't want to go through tons of dollars just to find out, it didn't work. Anyone?
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Tagging a few Mayo Clinic Connect members who have mentioned Mayo Clinic and SIBO to see if they can speak to their experience with Mayo Clinic for SIBO @gboi @sailingohana @kendra75 @azj @melrosedecosmo @ggr. Hoping they can advise on going to Mayo Clinic and whether they an offer treatment that has helped.
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2 ReactionsMy daughter went to Mayo Scottsdale. She was diagnosed with mast cell activation, that was the underlying cause of the SIBO. Since she has been on the med, she has not had SIBO. I can't remember how many years it has been. At least 6, maybe 8. A neurologist diagnosed her with POTS and Ehler's Danlos as well. She takes a lot of meds. The mast cell med is Cromolyn Sodium. The doctor was Brent Goodman. It looks like he is no longer at Mayo, but it also looks like he still has an association with them. She lives in VA. Her mast cell doctor is an allergist. If you have recurring SIBO you might want to investigate mast cell activation.
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5 ReactionsYou said you still have SIBO, are the symptoms Nausea and stomach pain?
Thanks.
@carmapple9. I have severe constipation, esophagitis and weight loss. I'm always hungry.