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Prolotherapy for SI joint pain

Posted by lara2323 @lara2323, Mar 6, 2022

I am considering undergoing prolotherapy for chronic SI joint pain. Unfortunately the practitioner couldn't tell me how long patients had relief.
Has anyone had prolotherapy on their SI joint? If so, how many treatments did you receive and how long did the pain relief last?

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cantstopwontstop | @cantstopwontstop | Jul 2 1:31pm
In reply to @rjmtwit "I had an excellent response to Prolotherapy. My SI Joint was causing lots of trouble after..." + (show)
Profile picture for rjmtwit @rjmtwit

I had an excellent response to Prolotherapy. My SI Joint was causing lots of trouble after a hip operation left one leg shorter than the other. The prolotherapy treatment worked on the ligament connected to the SI Joint that had become "lax", or overstretched, and could not support the hEDS joint as it normally would. The treatment activates your body to fix itself and in my case this particular fix took 10 days before the ligament tightened itself in the middle of the night, like a rubber band snapping back.
So, prolotherapy fixes ligaments, tendons and other soft tissues but not the joint itself. My SI Joint still moves a bit too far, but a knee to the chest and keeping the connective muscles in good shape and not overly tight. My Doctor did say that I might need a repeat after 5-10 years. It has been over 5. I have also heard that a fix on the first round is a bit unusual.
Due to a second hip operation, this one gone bad, my SI Joint was taxed again. This time, as I wasn't walking much, the damage went up the spine, loosening all the joints. My cervical joints became loose enough to cause issues. Another prolotherapy treatment tightened the ligaments that are actually part of those cervical joints and the blood flood to my brain is protected. For these joints a chin to the neck, pulled up like a castle guard works to do small readjustments.
I really believe I would not be walking around today without protherapy and am so glad to see Mayo include treatments in their wheelhouse.

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I pray you see this somehow and are able to reply to me! You are the first person I've encountered to state outright that your cervical instability came from your pelvis instability having "traveled up the spine" so to say. This is precisely what has happened to me and I'm astounded at the number of professionals that don't seem to grasp the concept. my si joints are unstable and out of alignment. It's been a chronic problem for years now; as time went on, the rest of my spine attempted to counteract what was happening at the usually strong base (the si joints) by developing its own rotational curves all the way up the entire kinetic chain, to the point where I developed craniocervical instability and now I have atlantoaxial instability- rotatory dislocation/subluxation!

Anyway, I have been searching and searching for prolotherapy injections to be done by a doctor or practitioner who gets this concept. I cannot seem to find anyone! I've had prolo, prp, and stem cells but in each case the doctor would only inject into or around my si joints. It was clear that each doctor I saw and had injections from, did not have an understanding of ligamentous laxity as the cause of the si joint instability. I am searching for a doctor who does understand this, and who will know which ligaments to target with injections and where precisely.

I am in the US and willing to travel because I am going to have to go thru with si joint fusion surgery otherwise. If I can locate a doctor to do prolotherapy injections on me properly (sounds like your doctor does!) then I believe I have a great chance at being able to heal without having to go through the surgery. However I cannot continue keeping my entire life on hold any longer, so this comment of mine to you is part of my last ditch effort to find that ideal injecting doctor that I so desperately need, asap, before I would resort to the surgery that I've been approved for and can do "at any time" with my awesome surgeon at Mayo.... surgeon is Dr. William cross III, just for others' reference in case anyone reading needs the name of a great si joint surgeon, I recommend. And I've consulted with many. He's top notch.

Would appreciate anyone's input or answer to my comment here if anyone seeing this knows a doctor who does prolotherapy injection treatments specifically for si joint instability stemming from ligament laxity. Thanks so much in advance!!!

REPLY
Profile picture for cantstopwontstop
cantstopwontstop | @cantstopwontstop | Jul 2 1:35pm
In reply to @rjmtwit "I had an excellent response to Prolotherapy. My SI Joint was causing lots of trouble after..." + (show)
Profile picture for rjmtwit @rjmtwit

I had an excellent response to Prolotherapy. My SI Joint was causing lots of trouble after a hip operation left one leg shorter than the other. The prolotherapy treatment worked on the ligament connected to the SI Joint that had become "lax", or overstretched, and could not support the hEDS joint as it normally would. The treatment activates your body to fix itself and in my case this particular fix took 10 days before the ligament tightened itself in the middle of the night, like a rubber band snapping back.
So, prolotherapy fixes ligaments, tendons and other soft tissues but not the joint itself. My SI Joint still moves a bit too far, but a knee to the chest and keeping the connective muscles in good shape and not overly tight. My Doctor did say that I might need a repeat after 5-10 years. It has been over 5. I have also heard that a fix on the first round is a bit unusual.
Due to a second hip operation, this one gone bad, my SI Joint was taxed again. This time, as I wasn't walking much, the damage went up the spine, loosening all the joints. My cervical joints became loose enough to cause issues. Another prolotherapy treatment tightened the ligaments that are actually part of those cervical joints and the blood flood to my brain is protected. For these joints a chin to the neck, pulled up like a castle guard works to do small readjustments.
I really believe I would not be walking around today without protherapy and am so glad to see Mayo include treatments in their wheelhouse.

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Please help me out and share the name of your prolotherapy doctor that did your si and your cervical ligaments? 🙏🙏 thanks in advance! I'm going thru exactly what u describe here. I would be so grateful for you to share your doctors name please! 🙂 thank you for ur post and thank you for taking the time to help me, and others like us, out!

REPLY
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mshaaren | @mshaaren | Jul 2 3:16pm

Do your own research as well as ask experienced patients!
Look on reputable websites

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sharon22 | @sharon22 | Oct 25 10:50am
In reply to @karel "I HAD A MRI TO FIND OUT THAT I HAVE 2 LABRUM TEARS IN MY HIPS...." + (show)
Profile picture for karel @karel

I HAD A MRI TO FIND OUT THAT I HAVE 2 LABRUM TEARS IN MY HIPS. THE RIGHT ONE MORE SO. SINCE I ALSO HAVE OSTEOPOROSIS, SPINAL STENOSIS. CRPS. I ALSO HAVE NARCOLEPSY AND CATAPLEXY . THE TRICYCLIC MEDICATION I TAKE FOR IT MAKES PLASMA RICH PLATELET CONTRAINDICATED. I AM NOT A CANDIDATE FOR ANY TYPE OF SURGERY. HOWEVER MY PAIN DOCTOR TRIED AN INJECTION IN THE HIP OF DEXTROSE AND WATER, WHICH IS PROLOTHERAPY. WHILE ITS NOT COVERED BY INSURANCE, HE WAS KIND ENOUGH TO TRY IT ON ME. AFTER JUST 1 SHOT I NOW HAVE AT LEAT 50% RELIEF WHERE STEROIDS DID NOTHING. I HOPE EVERYONE A PAIN FREE DAY.

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Haven't heard of it before. However, it sounds promising when I google it. I'm guessing it doesn't come up as an option very often since it is not covered by insurance and not FDA approved.

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willow5 | @willow5 | 5 days ago
In reply to @karel "I HAD A MRI TO FIND OUT THAT I HAVE 2 LABRUM TEARS IN MY HIPS...." + (show)
Profile picture for karel @karel

I HAD A MRI TO FIND OUT THAT I HAVE 2 LABRUM TEARS IN MY HIPS. THE RIGHT ONE MORE SO. SINCE I ALSO HAVE OSTEOPOROSIS, SPINAL STENOSIS. CRPS. I ALSO HAVE NARCOLEPSY AND CATAPLEXY . THE TRICYCLIC MEDICATION I TAKE FOR IT MAKES PLASMA RICH PLATELET CONTRAINDICATED. I AM NOT A CANDIDATE FOR ANY TYPE OF SURGERY. HOWEVER MY PAIN DOCTOR TRIED AN INJECTION IN THE HIP OF DEXTROSE AND WATER, WHICH IS PROLOTHERAPY. WHILE ITS NOT COVERED BY INSURANCE, HE WAS KIND ENOUGH TO TRY IT ON ME. AFTER JUST 1 SHOT I NOW HAVE AT LEAT 50% RELIEF WHERE STEROIDS DID NOTHING. I HOPE EVERYONE A PAIN FREE DAY.

Jump to this post

That is fantastic it helped! Yes, along the lines of PRP, it is not covered by insurance. My massage therapist had it done and it helped her a lot. PRP works for me and many others, why insurance insists it’s not a reliable form of treatment is beyond me. Same with prolotherapy.

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