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Second course of Evenity after one year hiatus
Osteoporosis & Bone Health | Last Active: 11 hours ago | Replies (6)Comment receiving replies
@dmshope, Do you think that Tymlos made your cortical bones break? Were you taking it when you had fractures? I was on 20 mcg of Tymlos (2 clicks) when I broke the second metatarsal in my left foot just by starting out on a walk. That was 9 months ago and I still have 2 swollen toes. I have a lot of pain in my feet. The last orthopedist suggested no more tests, because they don't do anything for it anyway. I had already broken 6 other cortical bones; shoulder, wrist, hand, elbow, and 2 ankle bones.
After I broke my foot, I increased the Tymlos to 40mcg (4 clicks), I took that for 9 months, then took Forteo for 6 months and am now back on a half dose of Tymlos. I had good improvement on my DEXA and my bone markers last May. I added an estrogen patch, Menostar, 2 months ago with hopes of holding in gains and lowering my CTX further.
What kind of results have you had so far on your DEXA and bone markers. Apparently, you feel like you need to gain more strength in your feet. How are you healing and are you having any pain? I'm sorry that I can't help you with your question about a second course of Evenity. I understand how awful it is to have fractured feet and how difficult it is to heal them. I wish you the best.
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@drsuefowler
Dear One, I am so sorry for all of your fracures and struggles. Something is very imbalanced to cause this prevasive weakness. I do hope you have been to geneticist who speciallizes in bone disseases. I recommend the complete genetics test ( i think 304 diseases ) bone dysplasia panel to assess if there is a genetic component . My tests did show a gentic componement but of unknown significance. I assume you have had a complete lab reveiw to elimiante tyroid issue, inflammation, gut disease etc. This also needs to be done.
To answer your question - my 7/8 foot fracture happend 3 months into my treatment with tymlos: I do not think the medication contributed to that fracture. Tylmos becomes more resportive ( dissolves bone/ cortical thinning) later in the treatment cycle. Many people are not effected but I was and cortical bone was reduced - ie foot weakness. I was on tymlos too long. Now Forteo is more aggressive than tymlos in its effect on cortical bone so I would question the doctors theory as to why you are on that Evenity is better with cortical bone building so that may be an option for you . Please read Great Bones by McCormick - it will help you understand and give hope.
BLessings