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izzybizzy avatar

New here and have working diagnosis of Lupus

Autoimmune Diseases | Last Active: Oct 24 9:47pm | Replies (11)

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Profile picture for fairn @fairn

@izzybizzy I was very interested to read that you had been diagnosed with CRPS following your finger injury. I had some major surgery on my hand years ago, for Dupytren's Contracture and was diagnosed with CRPS shortly afterwards. The surgeon said surgery revealed that there was an inflammatory process going on not related to Dupytren's. Due to several symptoms and a positive ANA test for the past 7 years, I finally saw a rheumatologist this past July. He says that he doesn't think it was CRPS (or Dupytrens), but that it is part of an autoimmune issue. I have been tentatively diagnosed with inflammatory arthritis, early Shogren's and connective tissue disorder. I have symptoms of Lupus (face rash, severe fatigue, fevers, etc.), but I am still on the front end of finding out what is tracking. He started me on Hydroxychloroquine and I believe it has helped my hand - less redness, heat and stiffness. I tell you this with the hope of encouraging you that if you can find a rheumatologist who focuses on inflammation treatment, it may help with CRPS. I discovered that several autoimmune responses are very similar to the symptoms of CRPS. I will be interested to hear how you progress!

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Replies to "@izzybizzy I was very interested to read that you had been diagnosed with CRPS following your..."

@fairn that’s so interesting and thank you for sharing your story with me! I’m sorry you have these issues… I did research and saw a link to auto-immune disease and CRPS and also osteoporosis! I’m starting with a new integrative medicine doctor soon, and hopefully she will look more at the big picture rather than just my symptoms finally. I am sure there is a correlation to all my woes it just takes a savvy specialist to see it. My rheumatologist is an NP, not MD but I don’t know if that makes a difference, she’s very nice and thorough, but I will point all this out to her in January also. Thank you and hoping you feel better, though I hate when folks say that to me I must say, but here’s hoping to some relief!!
Hydrochloroquine was not great for me, very bad depression with it