@elm123
I worked for IBM for 31 years, so I'd like to think I was good at organizing and taking the ball and running with it. Unfortunately, MCI wasn't on my list to deal with, I don't even know if I knew what that was. Do you have Medicare as primary? We had Medicare first, then IBM went to a different retiree plan, and we ended up on Medicare Advantage. That wasn't good for us, as everything we did was denied, and the doctors in Florida, many of them wouldn't take Medicare Advantage, United Health Care - even Mayo in Jacksonville which previously did but stopped two years back. So we switched back to Medicare.
As I mentioned my husband is on lequembe his fifth infusion, today he goes for an MRI. Yes, try to do your lists, and look at them every morning and cross off what you did. On the infusions, when they go on them, at least lequembe, there is an MRI done before every 3, 5, 7 and 14th infusion, so if you can get through insurance paying for the petscan, make sure they cover the MRI's. My understanding is that it used to be every 4th infusion, but that changed in August, 2025. I don't know if the doctor's practice we're in changed it, or if it's a lequembe requirement.
Hope this helps.