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Liver Diseases Support Group: Let’s connect
Liver Diseases | Last Active: Oct 28 11:04am | Replies (33)Comment receiving replies
Hello all,
Over the last month, I have dealing with a lot. Started about a month ago was at work and had severe muscle weakness in arms and legs. Went to ER did abdominal ultrasound and said I had enlarged liver and diagnosed me with mild steatohepaitis. Bilirubin in blood was 2.0 at time. All other lab blood work and lfts were consistent with fatty liver. Since a month ago I have had extreme fatigue and muscle weakness. I have no appetite and have lost 35 lbs in month. I have developed in last month issues with dry mouth and trouble sleeping at night. I have constant brain fog. I saw hepatlogist and they did abdominal CT scan with contrast and he said my liver is smooth and normal and only shows faint lines of fatty liver. Also performed fibroscan and my results from that were 5.7 and 277. Which he said were consistent with fatty liver and I requested liver biopsy and he said it was not necessary due to current lab and blood test results. He stated all of my symptoms : the brain fog, muscle weakness, are not liver related and to follow up with PCP. My family thinks I am making all this up and it's all in my head. I am worried that all these symptoms are related to end stage liver disease. Has anyone had any experiences like mine? I am alone and very scared and looking for support and answers? I am a 38 year old male with a wife and 2 young kids at home.
Replies to "Hello all, Over the last month, I have dealing with a lot. Started about a month..."
@ccballer45 I have hemochromatosis I was tired with some brain fog. Have your iron checked. I have to have a philbotomy every month. Mine is hereditary. There are other types of hemochromatosis so having your iron checked is important.
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@ccballer45 Welcome to Connect. I'm fully aware of how alone you must be feeling with those uncomfortable symptoms and not knowing what is the cause. I was diagnosed with liver disease years ago, and over time, I experienced some of the symptoms that you are experiencing. In my situation this was a gradual health decline.
Since you have already seen a liver specialist, and they have ruled out liver disease as being responsible for your symptoms, I believe you should contact your primary care doctor (PCP) for further investigation. They will likely want to get you in to see another specialist.
Do you have someone to go with you? It is always helpful to have an extra set of ears - (especially since family thinks you are making this up).
Do you have a primary care doctor that you can contact?