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Pancreatic Cancer Recurrence after Whipple

Pancreatic Cancer | Last Active: Nov 27, 2025 | Replies (117)

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Profile picture for katieliz @katieliz

@stageivsurvivor I definitely want to achieve long term survival, your story is inspiring! I am getting good reports right now, but it is the sneakiness of this cancer, coming back, that concerns me. I had 8 rounds of full blast fulfirinox, 5 before the Whipple, 3 after, but the dosage was lowered last cycle as my platelets were too low to continue, and so had had 6 wks of delays after the last 2 rounds, still too low after the last round with reduced chemo so again delayed. I have asked if there’s anything I can do to raise my platelet count but have been told that it just takes time. So now have 3 rounds left, hoping to get going again within the next two weeks. If you know anything I should be doing/trying, I’d appreciate it. I have been very fortunate in some ways, the cancer was stage 1, on the head of the pancreas, Whipple went well. But I want to do all I can to keep going, more than a year or two, expecting my first grandchild in February, and my first published book is coming out in 2027. Thank you

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Replies to "@stageivsurvivor I definitely want to achieve long term survival, your story is inspiring! I am getting..."

@katieliz Hi! My mom had platelets and RBC infusion fur to having to severe bleeding rather than just FOLFIRINOX causing it. What caused the bleeding is the hemorrhoids from severe diarrhea after 3rd round of chemo, and norovirus. She was on Eliquis for liver thrombosis which exacerbated this problem. Her levels are good now since they have platelets. Have they offered that to you?

P.s. I also come to read @stage4survivor ’s posts to induce a daily dose of positive reinforcement and hope.