@elm123 You are not alone and thank you for sharing. My husband too, has MCI, and is on lequembe infusions that I worry day in and out about. I'm so worried about the brain swelling and bleeding but what's the alternative. I can still have conversations with my loved one, I even read him this morning's, "The Long Quiet" on this connect site, so we could talk about what we see happening, if and when it happens in the progression. It's all so overwhelming, that I'm trying daily to just practice gratitude. So many things have happened for us, and I'm asking myself every day, why. We've been living in a hotel to a rental, where I lost a lot of money, having to move out, then another rental, because our own house. THe day I found out about my husband's MCI was the day my house was diagnosed with mold, and a quick move out. All of that pales in comparison to MCI - and it's progression and to every caregiver that loves their partner and wants to preserve their dignity as long as they can. I'm trying hard to live our lives the best we can too, No, you are not alone. I'm there as well as all the others on this site, alongside you, every day. THank you for your share. My husband is going to his 5th infusion; he has an MRI this week before the 5th lequembe infusion. Just remember to check your Part D Plan during the enrollment plan, as we want to make sure the lequembe infusion (the medicine) is covered under a new formulary. There is so much to consider, it's frightening, when we don't know what we don't know.
@elm123 You certainly have your hands full with all that you are dealing with. The unknown can be frightening as we don't know what to expect and therefore how to prepare. Being unprepared is really uncomfortable for me. I will keep you in my prayers and ask God to send you strength and courage.