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Profile picture for Chris Gautier, Volunteer Mentor @santosha

Hi @crissyh76
I'm happy to hear you already got a new doctor's appointment scheduled. Is this new doctor a neurologist and also an epileptologist?
As the Epilepsy Foundation article mentions, the likelihood of recording epileptiform discharges during a routine EEG is small. Therefore, some doctors recommend doing an EEG with sleep deprivation, as these are more likely than routine EEGs to show interictal epileptiform discharges. But most importantly, share detailed information about the events you've had with your doctor.
The first epileptologist I went to gave me the correct diagnosis of epilepsy and identified my type just by asking questions and understanding my events. I was amazed by her assertiveness about my diagnosis, even before looking at my test results. At that time, I already knew I had temporal lobe epilepsy through my first EEG with sleep deprivation ordered by another doctor.
As to cold medicines, it's known that some of them can interact with AEDs, increasing the risk of seizures. You mentioned you missed your medication at that time—but did you also take DayQuil and NyQuil? I've heard that these cold medicines can interact with AEDs, but please check this information with your doctor.
Wishing you a very good appointment with this new doctor, and send me your news afterward!
Chris

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Replies to "Hi @crissyh76 I'm happy to hear you already got a new doctor's appointment scheduled. Is this..."

@santosha
Honestly no I didn’t check with anything on meds just assumed I shouldn’t take them together. I am hard headed and don’t like to take any meds prescribed or not lol. I am having a hard time facing this ordeal as it is due to nobody in my family that I know of has this issue. Found out in my 30’s I don’t know my who my father is. Also other than work the other day all have been at night in my sleep around 3/4am even with CPAP machine I sleep an average 6 hours or less nightly don’t nap etc. I M having a hard time accepting anything due to trying to do the right thing nd keep having troubles and making bills that are outrageous lol and new doctor did Evisit and going to try a new med and seemed very nice and hopefully will help get answers unlike the last one that stated I had a pattern. Thank you for your reply I highly appreciate it.