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HER2 non small cell adenocarcinoma stage 4 lines of treatment
Lung Cancer | Last Active: 1 hour ago | Replies (10)Comment receiving replies
@mil63, A new diagnosis like your husband's is often overwhelming. There is so much to learn, and many decisions to make. That's great that his tumors are responding to treatment!
There may be research that supports the oncologist's plan, but maybe the choice is squishier than that. It's certainly worth a conversation. Some stage IV cancer patients can go directly to a targeted therapy as fist line. I was one of those cases. I'm still on my first line inhibitor (for ALK positive NSCLC). Have you asked his oncologist what reason they have for continuing with the current treatment vs an inhibitor?
@sboes , I believe you are HER2, and were on enhertu at one point. What treatments are you doing now, if any?
Replies to "@mil63, A new diagnosis like your husband's is often overwhelming. There is so much to learn,..."
@lls8000 . Hello, what types of treatments did u receive that YOU are alive 5 years later?? chemo? radiation?
I'm waiting for final diagnosis for stage 4 lung cancer. NO word from my doctor yet, if I need biopsies of lung and lymph nodes. Also final results of thyroid scan. It metastized to my skin of right temple. That is why we found I had cancer w/out any signs and symptoms at all.
Thanks so much. I am scared about what I have read about immunotherapy meds!! very scary!
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@lls8000 thank you . We had a second opinion at Mayo when we started and they concurred 💯 with the first line treatment I mentioned in our local hospital .
It’s chemo carboplantin, alimta and additionally immunotherapy- keytruda.
The second line explained to us is :
Fam- Trastuzumab deruxtecan-nxki for HER 2 over expression in non small cell lung adenocarcinoma. (if we find first line not working)
It seems to be working at mid cycles but it feels like , are we wasting time? Can it be more successful do other ?
Obviously we are still getting educated and it is overwhelming. It’s a scary feeling to think we have to negotiate .