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Profile picture for dnfjc @dnfjc

@vcsongradi hi did they ever offer debulking surgery? What kind of cancer do you have? Have you taken advantage of palliative dr and social worker usually offered ? I talk freely with social worker that comes during my chemo. And make regular appointments with palliative dr to ask questions and talk about side effects. This is really helpful. I have had anxiety disorder for 45 yrs. And seem to be ok with my anxiety medicine. Do you have someone to talk to?

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@dnfjc

Debulking surgery was never offered. One oncologist told me that, "surgery would never be an option." I have rectal cancer with primary tumor located at the rectal/sigmoid junction, stage IV with mets to liver and both lungs. I have people that I talk to, friends and family, and this forum has been helpful as well. I am on a palliative trajectory. I have met with the social worker, and I will meet with her if needed. I talk with my treating oncologist about side effects, etc. So far the only real side effect that has affected my quality of life is the neuropathy. Fortunately some of it has faded from my hands, but remains in both feet. It is numbness, not pain, but it has caused me to fall a couple of times because I was not exactly sure where my feet were and ended up tripping on them. I have also smacked my toes into furniture and walls again not knowing exactly where my feet were; that's been frustrating but I get that it's a common side effect.