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baker23 avatar

Severe pain after stage2 y90 treatment

Neuroendocrine Tumors (NETs) | Last Active: Oct 24 11:59am | Replies (16)

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @jespi and welcome to the NETs support group on Mayo Connect. I'm happy to know that you are looking for answers on your mom's behalf. As this is your first post, would you post a bit about her NETs journey? I'm wondering how long she has been diagnosed and what other treatments she may have had.

I look forward to hearing from you again.

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Replies to "Hello @jespi and welcome to the NETs support group on Mayo Connect. I'm happy to know..."

@hopeful33250

She was diagnosed with HCC liver cancer in the summer of 2024 and has since had one y90 treatment in june 2024 and then had a follow up, aggressive clean up y90 just this past august 2025.

It’s been about 7 weeks since the procedure and it seems like the pain has only gotten worse. She’s been in and out of the ER and her endoscopy shows only dead cells so while it is good that cancer has not spread, she’s still incredibly inflamed.

Searching for answers to take the pain away as it has been incredibly de-habilitating.