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Pancreatic Disorders Group: Introduce yourself and connect with others
Pancreatic Disorders | Last Active: Feb 26 11:35pm | Replies (89)Comment receiving replies
Hello @ericawiersfischer
I appreciate you sharing your remarkable journey here on Connect. First, let me congratulate you on persisting to find the correct diagnosis and treatment for this elusive problem. I so admire the way you were not dissuaded (especially by the NP who wanted to give you a psych referral) by misdiagnoses and that you continued to look for an answer actively.
I'm guessing that you must have lost a lot of weight during this process of finding an answer. Are you able to eat comfortably now? What type of foods are you able to eat?
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@hopeful33250
Thank you! I encourage all to advocate for yourself, no one knows your body better. I knew something was wrong.
I had lost quite a bit of weight for a time, but other medications for my various other chronic conditions and I kept getting put on steroids because I had anaphylaxis from so many meds they tried. I have a genetic issue with medications. So, right now I am about 20 lbs over and trying to lose weight. Since surgery though I have been losing weight as my appetite has decreased and I eat small meals more often as tolerated. I have always kept to low fat unprocessed whole foods. I cook from scratch and became gluten-free due to it causes blisters on my tongue and throat and more gasto issues. I have consulted with nutrition many times over the years. and I would suggest that to you if you need help. They taught me how to try to get the vitamins and minerals that I have problems absorbing by eating the right foods or combinations of foods. I also had my vitamins and minerals tested and they check them yearly. I do of course take many supplements too. As always check with your provider before you make changes to your diet including vitamins and minerals supplementation. My body keeps E for some crazy reason, so my multi needs to have no or low E. Magnesium doesn't stay in me at all, I take 1000mg a day and am still borderline. I hope you find what works for you soon. I will be praying for you.