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Refractory TIF-1 Gamma Positive Dermatomyositis

Autoimmune Diseases | Last Active: Nov 4 9:38am | Replies (10)

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@becsbuddy he kept coming home complaining about hurting all over, not being able to climb up into the truck (18-wheeler) like he usually does and not being able to get up from a squatted position. It bothered me, so when I went to see my Neurologist, I told him that I need him to see my husband as soon as possible and explained. He had him in the next day, which was surprising. That day he performed an NCS/EMG and drew blood. Two weeks later we came back for results and he said he knew what it was when he did the NCS/EMG but to what depth not until the blood work came back. He told us that the night of our visit he went home and it bothered him all night, that when he came back into the office, he called the lab and added the extremely rare types to the order. He said he was glad he did, because we popped positive for one of them.

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Replies to "@becsbuddy he kept coming home complaining about hurting all over, not being able to climb up..."

@phoenixuprising there is a trial for refractory autoimmune diseases listed. Hope that helps.
https://www.bmsclinicaltrials.com/us/en/clinical-trials/NCT05869955