← Return to Metastatic bone cancer with unknown primary: Anyone else?

Discussion
christinaclc avatar

Metastatic bone cancer with unknown primary: Anyone else?

Cancer | Last Active: Nov 14 6:01pm | Replies (13)

Comment receiving replies
Profile picture for susan38 @susan38

Hi, I have groin cancer lymph nodes with unknown primary.
I also start chemo tomorrow with a 3 month radiotherapy scheduled daily for 5 days a week, Monday to Friday.
I’m petrified that the chemo will damage my brain, & alter my cognitive functioning.
The radiotherapy is around the anus and groin and umbilical and I’m sure will burn my skin and
make toilet functioning extremely painful. 😰 and sleeping positioning
will be awkward.
I’m also concerned that other organs like my bladder and kidneys will also be affected by this treatment.
I’m continually asking myself why am I going to accept this treatment when I know the chemo will damage so many cells with its toxicity, and the radiotherapy will impinge greatly on my skin integrity?
Weighing the positives and negatives. Right now I’m feeling fit,
extremely well and healthy, have no cognitive problems and am a happy individual, eating and sleeping well after recovering from 5 herniated disks.
So many tests and drs. Appointments over the last two weeks since groin biopsy came back positive, but no primary located or seen on any scans.
I’ve asked could the biopsy results be incorrect. Stage 4? Metastatic cancer? But not showing anywhere else on scans except groin lymph nodes.
I had thought with the biopsy that the cell DNA would indicate where the primary originates from. But not the case.
So…unknown primary. And why have I agreed to the above listed treatment?
I think I will be doing so much more harm to my body. I’m really unsure that I’ve made the correct decision. Will it be life saving or life destroying?
Either way…decision made and tomorrow, I start on an unknown journey along with my unknown primary. I wish u well. Best of luck.

Jump to this post


Replies to "Hi, I have groin cancer lymph nodes with unknown primary. I also start chemo tomorrow with..."

@susan38 I wish you the best! Please keep us in posted.