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Hello, All -- cancer is considered stable as of the CT in June, so was switched to maintenance chemo and currently the cancer remains stable. Latest CEA was 2.6. I ended up switching oncologists because I wanted to move my oncologist appointments to every 4 weeks instead of every 2 weeks, and she wasn't comfortable with that. My new oncologist is just fine with every 4 weeks as long as the cancer remains stable. However, I'm feeling burned out. I am glad that the cancer is stable, however, I'm still getting infusions and 46 hour 5-FU ball every 2 weeks. Still no mention of surgery. Oncologist says that the chances are high of cancer returning to growth and spreading within 1 to 2 years, then will try a different chemo (FOLFIRI I think he said) with fewer side effects than FOLFOX. I'm having a hard time accepting that I will have to continue treatment (either maintenance or another chemo) every 2 weeks for the rest of my life. The rest of my life! I feel trapped at times. I feel like I can't "breathe" at times. I find that my mental health is becoming more affected lately. I suppose I can just stop any and all treatment at any time, and to do that at this point I think wouldn't be a good idea since the cancer has responded positively to the treatment. I guess I'm not so sure I will continue with another type of chemo if it starts growing or spreading again. I'm not getting "rewarded" in a very satisfying way now that the cancer is stable because I still have to go to all these damn appointments. The infusion center is fighting me about getting lab/oncology visit/infusion all on the same day which would shorten my appointments to 3 days per treatment week instead of 4 days. I should be feeling glad that my cancer is stable instead of being more irritable and frustrated that nothing on the outside of my body has changed.

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Replies to "Hello, All -- cancer is considered stable as of the CT in June, so was switched..."

@vcsongradi hi did they ever offer debulking surgery? What kind of cancer do you have? Have you taken advantage of palliative dr and social worker usually offered ? I talk freely with social worker that comes during my chemo. And make regular appointments with palliative dr to ask questions and talk about side effects. This is really helpful. I have had anxiety disorder for 45 yrs. And seem to be ok with my anxiety medicine. Do you have someone to talk to?