How does everyone cope on a daily basis??
Some days the pain is so bad I want to cut off my feet and hands. Sometimes I cry, sometimes I deal, sometimes I wish I wasn't here anymore so I wouldn't have to deal. I've tried meditation, Qigong, feet exercises, nothing ever works or even lessens the pain. I pray, but I don't God is listening anymore. I'm just curious what you all do to cope if/when you have days when you feel this way? Sorry to be a downer. Thanks for listening.
Interested in more discussions like this? Go to the Neuropathy Support Group.
@okaynowwhat I'm so sorry, that's such a long time to be in so much pain. I'm glad you found something that gives you some relief.
@laurenthewise1 thank you!
@tomlamanna I can absolutely relate and I'm so sorry!
Pain all the time…..!!!
@tomlamanna I would like to add my welcome to Connect along with @crazycatlady4110 and others. All I can add is take it one day at a time, never give up looking for something that might provide some relief for the pain and keep learning as much as you can about your neuropathy condition. Besides all of the different discussions here in the Connect Neuropathy Support Group - https://connect.mayoclinic.org/group/neuropathy/, the Foundation for Peripheral Neuropathy has a lot of great information - https://www.foundationforpn.org/living-well/.
I wonder if anyone on this site has had success with a pain management program?
@tomlamanna
I’m really sorry. Gabapentin helped me in a huge way too but of course every person has a different body and different reactions to medications and therapies. I take a LOT of gabapentin but it lets me live a halfway decent life so even though I may get dementia I have to hope there’s better treatments for that when I get older (I’m 59 now). I’ve had SFN for almost 20 years and I just keep trying stuff as it becomes available. The neurostimulator that I’m trying at the moment helps, it’s not 100% but it’s a little bit better. I’m very fortunate to have great Pain Medicine doctors that help me. I hope you can find something similar. I also think that my sort of baseline setting is as an optimist. I lose it from time to time but when I find my way back to hope and optimism I’m a happier person. I really don’t mean that to sound preachy, it’s just an explanation of *my* situation and personal experience. I wish you the very best!
@thomasmichael, There are a couple of discussions where members have shared about the pain rehabilitation center that might be helpful.
-- Anyone with CRPS been to Mayo Pain Rehabilitation Centers?
https://connect.mayoclinic.org/discussion/anyone-with-crps-been-to-mayo-pain-rehabilitation-centers/
-- Anyone had a successful experience w/ Mayo Pain Rehabilitation Center?
https://connect.mayoclinic.org/discussion/has-anyone-successful-experience-with-mayo-pain-rehabilitation-center/
@crazycatlady4110 Halloween kitties, my favorite.
@cit10jetjockey
Sometimes the nerves die, as in my case, so one gets some numbness and the wobblies, but little pain,
Sometimes the nerve sheath dies so the nerve is exposed. That's when it's bad.