I've been a member of the Facebook group since early 2016 and I'm still taking the protocol. I can say that it has helped me at least slow the progression of my idiopathic small fiber PN but I only have numbness and some tingling with no pain. My symptoms have actually improved since and the ever looming progression seems to have been stopped for me.

To someone who has been with the group since we used to have a document with links for ordering the individual supplements from the manufacturer or Amazon for the free shipping (B1, B2, B3, B7, Flaxseed Oil, Na R ALA, D3, Chelated Magnesium, Folate, Methylcobalamin B12, K2, and Acetal L Carnitine), $6/day doesn't seem too expensive although that's just my opinion. A side benefit for me has been dealing with fewer capsules to swallow along with not having to constantly be ordering supplements because some were shipped with different quantities.

To be honest, the Facebook group is comprised of active members who have found real relief for their condition and get frustrated when members keep asking questions about new treatments. I don't really like that aspect of the Facebook group but at least they are up front and will tell you they are not looking for other treatments when it works for them. I can also tell you that the FB group including myself have helped other group members who couldn't afford the protocol in the beginning. The group has been hacked by outsiders several times and that really is the reason they might seem a little controlling. Here on Connect, we have a great set of moderators along with a director who keep our community safe and open to all.

I've shared the research behind the different supplements in the protocol before but thought I would share them again. You can buy them each separately but I really doubt that it would be cheaper but it would also mean taking more capsules daily.