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Husband developing memory issues
Caregivers: Dementia | Last Active: Apr 5 6:58am | Replies (86)Comment receiving replies
@jannew
My husband was just (Finally) diagnosed with early Alzheimer’s and your experience is so much like mine. For as long as 3or 4 years ago I knew something was wrong - my husband would easily get lost even when driving to very familiar places. In the last year though things got progressively worse and as much as I wanted to deny that something was wrong, I knew it was. I went for a check up at our PCP’s and during that appointment, I gathered my courage and I explained everything that was going on (delusions and anger towards me). The doctor made an appt for my husband and I told him it was for an annual physical. Long story short he went on an antidepressant and things were much better. The Dr told my husband he needed to see a neurologist, so we did and after blood tests and an MRI he was told he has Alzheimer’s. Now we are waiting for approval for a PET scan in order to start one of the new infusion treatments. I am hopeful it will help slow the progression down.
Anyway- just wanted to say I understand all the feelings and difficulties you and others have described in this forum. Another big help for me was to talk to a therapist. I felt so alone with this. To this day I have wishful thinking that it will go away and we will be back to what we were. But I know that will not happen, so I’m trying hard to live our lives the best way we can. Best of luck to you and your loved one. At least this forum helps me to realize I’m not alone.
Replies to "@jannew My husband was just (Finally) diagnosed with early Alzheimer’s and your experience is so much..."
@elm123
Thanks to everyone who has responded to this thread, it is incredibly helpful to know we are not alone. I learn from all of your stories and am so grateful for both the opportunity to talk about things and the advice gleaned from your own experiences. My husband has a pcp appointment in early December as a first step in opening the discussion. I feel sure he will pass the basic in-office test as he is very functional and no one else is seeing anything wrong. But it is clear to me. I think we are at the very beginning of the journey. Warm thoughts to all of you, J.
Connect
@elm123 You are not alone and thank you for sharing. My husband too, has MCI, and is on lequembe infusions that I worry day in and out about. I'm so worried about the brain swelling and bleeding but what's the alternative. I can still have conversations with my loved one, I even read him this morning's, "The Long Quiet" on this connect site, so we could talk about what we see happening, if and when it happens in the progression. It's all so overwhelming, that I'm trying daily to just practice gratitude. So many things have happened for us, and I'm asking myself every day, why. We've been living in a hotel to a rental, where I lost a lot of money, having to move out, then another rental, because our own house. THe day I found out about my husband's MCI was the day my house was diagnosed with mold, and a quick move out. All of that pales in comparison to MCI - and it's progression and to every caregiver that loves their partner and wants to preserve their dignity as long as they can. I'm trying hard to live our lives the best we can too, No, you are not alone. I'm there as well as all the others on this site, alongside you, every day. THank you for your share. My husband is going to his 5th infusion; he has an MRI this week before the 5th lequembe infusion. Just remember to check your Part D Plan during the enrollment plan, as we want to make sure the lequembe infusion (the medicine) is covered under a new formulary. There is so much to consider, it's frightening, when we don't know what we don't know.