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How does everyone cope on a daily basis??

Neuropathy | Last Active: Oct 28 6:51pm | Replies (33)

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Profile picture for tomlamanna @tomlamanna

@laurenthewise1. I’ve tried everything that you said you do. Nothing has worked. I’m in pain from the time. I open my eyes to the time I show them at night.

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Replies to "@laurenthewise1. I’ve tried everything that you said you do. Nothing has worked. I’m in pain from..."

@tomlamanna I can absolutely relate and I'm so sorry!

@tomlamanna
I’m really sorry. Gabapentin helped me in a huge way too but of course every person has a different body and different reactions to medications and therapies. I take a LOT of gabapentin but it lets me live a halfway decent life so even though I may get dementia I have to hope there’s better treatments for that when I get older (I’m 59 now). I’ve had SFN for almost 20 years and I just keep trying stuff as it becomes available. The neurostimulator that I’m trying at the moment helps, it’s not 100% but it’s a little bit better. I’m very fortunate to have great Pain Medicine doctors that help me. I hope you can find something similar. I also think that my sort of baseline setting is as an optimist. I lose it from time to time but when I find my way back to hope and optimism I’m a happier person. I really don’t mean that to sound preachy, it’s just an explanation of *my* situation and personal experience. I wish you the very best!