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How does everyone cope on a daily basis??
Neuropathy | Last Active: Oct 28 6:51pm | Replies (33)Comment receiving replies
What I don’t understand is why so many have serious pain issues and I don’t have any pain. I have PN now for years without pain, just numbness and weakness. Balance is not great. The medical profession can only drug people as there is no cure for PN.
Replies to "What I don’t understand is why so many have serious pain issues and I don’t have..."
@cit10jetjockey
Sometimes the nerves die, as in my case, so one gets some numbness and the wobblies, but little pain,
Sometimes the nerve sheath dies so the nerve is exposed. That's when it's bad.
I too have Severe Peripheral Neuropathy with no pain. My feet are numb, I cannot feel the floor which causes balance issues, dizziness and falls. Several Neurologists later I had EMG/NCV testing, brain MRI (yes I have one). I finally had a Lumbar Puncture confirming high protein levels in my CSF and a diagnosis of CIDP, Chronic Inflammatory, Demylinating Polyneuropathy. A mouthful for sure. Getting ready to start a new medication, weekly injections of Vyvgart Hytrulo. Fingers crossed, a lot of hope and prayers for relief. Sometimes these medical problems are a journey. Unfortunately 50% of the doctors out there graduated in the bottom of their class. Keep trying to find your path.
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@cit10jetjockey glad for you that you have no pain.