← Return to Endometerial cancer with essential throbocythemia (ET) Jak 2 mutation

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Profile picture for Helen, Volunteer Mentor @naturegirl5

@1995victoria @val64 has been a member of Connect for 3 years. She is an active member of our Gynecological Cancers Support group. Her scientific knowledge is so very helpful in our support group. I often tag her when a scientific question comes up that involves genetics and lab sciences.

Any one of us can ask Dr. Google something and get an answer. My ongoing concern is whether the answer produced by Google or AI is reliable, valid, and accurate. When I want to find peer-reviewed research articles I use my university library's resources. But...that doesn't mean that I can actually comprehend the methods and results in a research paper in which I don't have the background. Fortunately, I have a resource under the same roof. My husband is a pathologist, now retired, and specialized in anatomic pathology and clinical chemistry.

@val64 Thank you for all you contribute to our Support Group and for explaining your background. How are you doing?

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@naturegirl5

I'm not doing well. I have been on four different treatments this year, none of which have worked. I'm pretty sure one did significant harm and made the cancer grow faster. I'm about to switch again in a couple weeks, but I've reached the dregs of the standard of care options. There's a clinical trial I would like to try, but there won't be any slots open until they get something through the FDA, which is, of course, closed.